Perception of people living with dementia and entrepreneurs on dementia-friendly leisure activities in society

Volume 4, Issue 4, August 2020     |     PP. 130-149      |     PDF (215 K)    |     Pub. Date: September 25, 2020
DOI:    217 Downloads     5664 Views  

Author(s)

Olaf Timmermans, Professorship Healthy Region, HZ University of Applied Sciences, Vlissingen, The Netherlands; University Antwerp, Centre for Research and Innovation in Care, Antwerp, Belgium; Academic Workplace Elderly Care Zeeland, Vlissingen, The Netherlands.
Iris van de Velde, Professorship Healthy Region, HZ University of Applied Sciences, Vlissingen, The Netherlands.
Mathilde Matthijsse, ZorgSaam Health Care. Terneuzen, The Netherlands.

Abstract
To maximize quality of life for people living with Dementia a continuous participation in society is indispensable. Within the CASCADE (Community Areas of Sustainable Care And Dementia Excellence in Europe) project we developed a strengths-based approach to maximise independence and participation of people living with dementia (PLWD) in the community. Important aspects of the continuous participation are patriating in meaningful leisure activities in the way people always did. In a qualitative design using the dialogue tables technique we explored the experiences and perspectives of PLWD (N=12) and entrepreneurs (n=10) on dementia-friendly leisure. Results of the study show PLWD have the need for leisure activities and dementia-friendly holidays and entrepreneurs are interested in making their service more dementia-friendly, however both groups need more support to make this a reality. The PLWD have difficulty finding appropriate activities and information about dementia-friendly holidays, and the entrepreneurs need more direction about how to make their business more dementia-friendly. PLWD report that the attitude of the community towards PLWD is an important barrier to enjoying leisure and holiday activities. Therefore promoting knowledge of and awareness about dementia within the wider community is an important step towards more inclusive communities where PLWD can participate fully and live their life to the full. We conclude awareness, support and understanding for PLWD and their behavior is needed in the community to make it possible for PLWD to enjoy participating in leisure activities. Also, with small adaptations, a number of contemporary leisure activities can be tailored dementia-friendly.

Keywords
people living with dementia, participation society, qualitative design, dialogue tables technique

Cite this paper
Olaf Timmermans, Iris van de Velde, Mathilde Matthijsse, Perception of people living with dementia and entrepreneurs on dementia-friendly leisure activities in society , SCIREA Journal of Sociology. Volume 4, Issue 4, August 2020 | PP. 130-149.

References

[ 1 ] Connell J., Page S. J., Sheriff I., and Hibbert J. 2017. ‘Business engagement in a civil society: Transitioning towards a dementia-friendly visitor economy’, Tourism Management, vol. 61, pp. 110–128.
[ 2 ] Dementia Australia, 2016 ‘Travelling and holidays with dementia’. Dementia Australia
[ 3 ] DiLauro M., Pereira A., Carr J., Chiu M., and Wesson V. 2017. ‘Spousal caregivers and persons with dementia: Increasing participation in shared leisure activities among hospital-based dementia support program participants’, Dementia, vol. 16, no. 1, pp. 9–28
[ 4 ] Fernández-Mayoralas G.et al. 2015. ‘Active ageing and quality of life: factors associated with participation in leisure activities among institutionalized older adults, with and without dementia’, Aging & mental health, vol. 19, no. 11, pp. 1031–1041.
[ 5 ] Genoe M. R. and Dupuis S. L. 2011. ‘“I’m just like I always was”: a phenomenological exploration of leisure, identity and dementia’, Leisure/Loisir, vol. 35, no. 4, pp. 423–452
[ 6 ] Genoe M. R. 2013. ‘“There is life after diagnosis”: Dementia, leisure, and meaning-focused coping’, Recreation and Society in Africa, Asia and Latin America, vol. 4, no. 1.
[ 7 ] Genoe M. R. and Dupuis S. L. 2014. ‘The role of leisure within the dementia context’, Dementia, vol. 13, no. 1, pp. 33–58
[ 8 ] Glaser and Strauss 2006. ‘The discovery of Grounded Theory, Strategies for Qualitative Research’ Aldine Transaction, New Brunswick, London.
[ 9 ] Innes A., Page S. J., and Cutler C. 2016. ‘Barriers to leisure participation for people with dementia and their carers: An exploratory analysis of carer and people with dementia’s experiences’, Dementia, vol. 15, no. 6, pp. 1643–1665.
[ 10 ] Connell, J., Page, S.J., Sheriff, I., Hibbert, J., 2017a. Business engagement in a civil society: Transitioning towards a dementia-friendly visitor economy. Tourism Management 61, 110–128.
[ 11 ] Connell, J., Page, S.J., Sheriff, I., Hibbert, J., 2017b. Business engagement in a civil society: Transitioning towards a dementia-friendly visitor economy. Tourism Management 61, 110–128.
[ 12 ] Dementia Australia, 2016. Travelling and holidays with dementia.
[ 13 ] DiLauro, M., Pereira, A., Carr, J., Chiu, M., Wesson, V., 2017. Spousal caregivers and persons with dementia: Increasing participation in shared leisure activities among hospital-based dementia support program participants. Dementia 16, 9–28.
[ 14 ] Fernández-Mayoralas, G., Rojo-Pérez, F., Martínez-Martín, P., Prieto-Flores, M.-E., Rodríguez-Blázquez, C., Martín-García, S., Rojo-Abuín, J.-M., Forjaz, M.-J., 2015a. Active ageing and quality of life: factors associated with participation in leisure activities among institutionalized older adults, with and without dementia. Aging & mental health 19, 1031–1041.
[ 15 ] Fernández-Mayoralas, G., Rojo-Pérez, F., Martínez-Martín, P., Prieto-Flores, M.-E., Rodríguez-Blázquez, C., Martín-García, S., Rojo-Abuín, J.-M., Forjaz, M.-J., 2015b. Active ageing and quality of life: factors associated with participation in leisure activities among institutionalized older adults, with and without dementia. Aging & mental health 19, 1031–1041.
[ 16 ] Genoe, M.R., 2013. “There is life after diagnosis”: Dementia, leisure, and meaning-focused coping. Recreation and Society in Africa, Asia and Latin America 4.
[ 17 ] Genoe, M.R., Dupuis, S.L., 2014. The role of leisure within the dementia context. Dementia 13, 33–58.
[ 18 ] Genoe, M.R., Dupuis, S.L., 2011. “I’m just like I always was”: a phenomenological exploration of leisure, identity and dementia. Leisure/Loisir 35, 423–452.
[ 19 ] Glaser, Strauss, 2006. The discovery of Grounded Theory, Strategies for Qualitative Research. Aldine Transaction, New Brunswick, London.
[ 20 ] Innes, A., Page, S.J., Cutler, C., 2016a. Barriers to leisure participation for people with dementia and their carers: An exploratory analysis of carer and people with dementia’s experiences. Dementia 15, 1643–1665.
[ 21 ] Innes, A., Page, S.J., Cutler, C., 2016b. Barriers to leisure participation for people with dementia and their carers: An exploratory analysis of carer and people with dementia’s experiences. Dementia 15, 1643–1665.
[ 22 ] Wang, H.-X., Xu, W., Pei, J.-J., 2012. Leisure activities, cognition and dementia. Biochimica et Biophysica Acta (BBA)-Molecular Basis of Disease 1822, 482–491.
[ 23 ] Wawrziczny, E., Pasquier, F., Ducharme, F., Kergoat, M.-J., Antoine, P., 2017. Do spouse caregivers of young and older persons with dementia have different needs? A comparative study. Psychogeriatrics 17, 282–291.
[ 24 ] Witte, R., van de Weg, A., 2016. Trainingsmap dialooggespreksleider.
[ 25 ] World Health Organization, 2017. Dementia: number of people affected to triple in next 30 years.
[ 26 ] World Health Organization, 2012. Dementia: a public health priority.